Development of a toolkit to enhance care processes for people with a long-term neurological condition: A qualitative descriptive study

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aut.relation.issue6en_NZ
aut.relation.journalBMJ Openen_NZ
aut.relation.volume8en_NZ
aut.researcherSezier, Ann
dc.contributor.authorSezier, Aen_NZ
dc.contributor.authorMudge, Sen_NZ
dc.contributor.authorKayes, Nen_NZ
dc.contributor.authorKersten, Pen_NZ
dc.contributor.authorPayne, Den_NZ
dc.contributor.authorHarwood, Men_NZ
dc.contributor.authorPotter, Een_NZ
dc.contributor.authorSmith, Gen_NZ
dc.contributor.authorMcPherson, KMen_NZ
dc.date.accessioned2018-09-13T01:06:28Z
dc.date.available2018-09-13T01:06:28Z
dc.date.copyright2018-06-01en_NZ
dc.date.issued2018-06-01en_NZ
dc.description.abstractObjective To (A) explore perspectives of people with a long-term neurological condition, and of their family, clinicians and other stakeholders on three key processes: Two-way communication, self-management and coordination of long-term care; and (B) use these data to develop a Living Well Toolkit', a structural support aiming to enhance the quality of these care processes. Design This qualitative descriptive study drew on the principles of participatory research. Data from interviews and focus groups with participants (n=25) recruited from five hospital, rehabilitation and community settings in New Zealand were analysed using conventional content analysis. Consultation with a knowledge-user group (n=4) and an implementation champion group (n=4) provided additional operational knowledge important to toolkit development and its integration into clinical practice. Results Four main, and one overarching, themes were constructed: (1) tailoring care:referring to getting to know the person and their individual circumstances; (2) involving others: Representing the importance of negotiating the involvement of others in the person's long-term management process; (3) exchanging knowledge: Referring to acknowledging patient expertise; and (4) enabling: Highlighting the importance of empowering relationships and processes. The overarching theme was: Assume nothing. These themes informed the development of a toolkit comprising of two parts: One to support the person with the long-term neurological condition, and one targeted at clinicians to guide interaction and support their engagement with patients. Conclusion Perspectives of healthcare users, clinicians and other stakeholders were fundamental to the development of the Living Well Toolkit. The findings were used to frame toolkit specifications and highlighted potential operational issues that could prove key to its success. Further research to evaluate its use is now underway.en_NZ
dc.identifier.citationBMJ Open 2018;8:e022038. doi: 10.1136/bmjopen-2018-022038
dc.identifier.doi10.1136/bmjopen-2018-022038en_NZ
dc.identifier.issn2044-6055en_NZ
dc.identifier.urihttps://hdl.handle.net/10292/11809
dc.publisherBMJ Publishing Group Ltd.
dc.relation.urihttps://bmjopen.bmj.com/content/8/6/e022038
dc.rights© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
dc.rights.accessrightsOpenAccessen_NZ
dc.titleDevelopment of a toolkit to enhance care processes for people with a long-term neurological condition: A qualitative descriptive studyen_NZ
dc.typeJournal Article
pubs.elements-id340471
pubs.organisational-data/AUT
pubs.organisational-data/AUT/Health & Environmental Science
pubs.organisational-data/AUT/Health & Environmental Science/Clinical Sciences
pubs.organisational-data/AUT/Health & Environmental Science/Nursing
pubs.organisational-data/AUT/PBRF
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences/HH Clinical Sciences 2018 PBRF
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