Hā Ora: Reflecting on a Kaupapa Māori Community Engaged Co-design Approach to Lung Cancer Research

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aut.relation.endpage207
aut.relation.issue2en_NZ
aut.relation.journalInternational Journal of Indigenous Healthen_NZ
aut.relation.startpage192
aut.relation.volume16en_NZ
dark.contributor.authorKidd, Jen_NZ
dark.contributor.authorCassim, Sen_NZ
dark.contributor.authorRolleston, Aen_NZ
dark.contributor.authorKeenan, Ren_NZ
dark.contributor.authorLawrenson, Ren_NZ
dark.contributor.authorSheridan, Nen_NZ
dark.contributor.authorWarbrick, Ien_NZ
dark.contributor.authorNgaheu, Jen_NZ
dark.contributor.authorHokowhitu, Ben_NZ
dc.date.accessioned2021-11-22T23:07:04Z
dc.date.available2021-11-22T23:07:04Z
dc.date.copyright2021en_NZ
dc.date.issued2021en_NZ
dc.description.abstractCo-designed research is gaining prominence within the health care space. Community engagement is a key premise of co-design and is also particularly vital when carrying out kaupapa Māori research. Kaupapa Māori describes a “by Māori, for Māori” approach to research in Aotearoa/New Zealand. This article discusses the research process of Hā Ora: a co-design project underpinned by a kaupapa Māori approach. The objective was to explore the barriers to early presentation and diagnosis of lung cancer, barriers identified by Māori. The team worked with four rural Māori communities, with whom we aimed to co-design local interventions that would promote earlier diagnosis of lung cancer. This article highlights and unpacks the complexities of carrying out community- engaged co-design with Māori who live in rural communities. In particular, we draw attention to the importance of flexibility and adaptability in the research process. We highlight issues pertaining to timelines and budgets, and also the intricacies of involving co-governance and advisory groups. Overall, through this article, we argue that health researchers need to prioritise working with and for participants, rather than on them, especially when working with Māori communities.
dc.identifier.doi10.32799/ijih.v16i2.33106en_NZ
dc.identifier.issn2291-9368en_NZ
dc.identifier.urihttps://hdl.handle.net/10292/14705
dc.publisherWaakebiness-Bryce Institute for Indigenous Health, Dalla Lana School of Public Health, University of Torontoen_NZ
dc.relation.urihttps://jps.library.utoronto.ca/index.php/ijih/article/view/33106
dc.rightsCopyright (c) 2021 Jacquie Kidd, Shemana Cassim, Anna Rolleston, Rawiri Keenan, Ross Lawrenson, Nicolette Sheridan, Isaac Warbrick, Janette Ngaheu, Brenda Hokowhitu. This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
dc.rights.accessrightsOpenAccessen_NZ
dc.subjectCommunity engagement; Indigenous; Rural communities; Health inequities; Māori; Kaupapa Māori; Lung cancer; Early diagnosis
dc.titleHā Ora: Reflecting on a Kaupapa Māori Community Engaged Co-design Approach to Lung Cancer Researchen_NZ
dc.typeJournal Article
pubs.elements-id396769
pubs.organisational-data/AUT
pubs.organisational-data/AUT/Faculty of Health & Environmental Science
pubs.organisational-data/AUT/Faculty of Health & Environmental Science/School of Clinical Sciences
pubs.organisational-data/AUT/Faculty of Health & Environmental Science/School of Public Health & Interdisciplinary Studies
pubs.organisational-data/AUT/PBRF
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences/HY Public Health & Psychosocial Studies 2018 PBRF
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