Enabling Participation for Disabled Young People: Study Protocol

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aut.relation.issue1en_NZ
aut.relation.journalBMC Public Healthen_NZ
aut.relation.volume18en_NZ
aut.researcherKayes, Nicola
dc.contributor.authorCarroll, Pen_NZ
dc.contributor.authorWitten, Ken_NZ
dc.contributor.authorCalder-Dawe, Oen_NZ
dc.contributor.authorSmith, Men_NZ
dc.contributor.authorKearns, Ren_NZ
dc.contributor.authorAsiasiga, Len_NZ
dc.contributor.authorLin, Jen_NZ
dc.contributor.authorKayes, Nen_NZ
dc.contributor.authorMavoa, Sen_NZ
dc.date.accessioned2019-06-28T04:14:11Z
dc.date.available2019-06-28T04:14:11Z
dc.date.copyright2018en_NZ
dc.date.issued2018en_NZ
dc.description.abstractBackground: Participation in community life is vital for health and wellbeing, promoting a sense of belonging, networks of social support and opportunities for physical activity. Disabled young people have lower levels of mobility and participation in recreational activities (physical, social and cultural), education and employment, than their peers without disabilities. This has implications for their health and wellbeing and life course opportunities. Previous research on the participation levels of disabled young people has primarily relied on parent/caregiver reports and been oriented to home and school environments. This study investigates how physical and social environmental factors cohere to support or restrict the everyday mobility and participation of disabled young people. Methods/design: The study is located in Auckland, Aotearoa/New Zealand (NZ). Participants comprise 35 young people aged 12-25 years with mobility, vision or hearing impairments. A mixed-methods research design combines objective (global positioning systems, accelerometers, geographical information systems) and self-report measures (travel diaries, and questionnaires) to assess young people's mobility and levels of participation in leisure/educational and employment activities with in-depth interviews exploring their everyday experiences of inclusion/exclusion, and factors enabling or constraining community participation. Parents/caregivers and disability sector key informant viewpoints on the community participation of disabled young people have also been gathered through in-depth interviews. Follow-up workshops with young people and parents/caregivers will identify pathways to increase participation and challenge current disabling practices. Discussion: This study looks beyond barriers in the physical environment to the interplay of personal, social and physical factors that enable or constrain the community participation of disabled young people. In keeping with the study's overarching goal of increasing opportunities for effective community participation and full citizenship of disabled young people, research methods were applied flexibily - negotiated and adapted to maximise each young person's participation in light of their abilities and preferences.en_NZ
dc.identifier.citationBMC Public Health, 18(1), 712.
dc.identifier.doi10.1186/s12889-018-5652-xen_NZ
dc.identifier.issn1471-2458en_NZ
dc.identifier.urihttps://hdl.handle.net/10292/12609
dc.publisherBioMed Central
dc.relation.urihttps://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-018-5652-x
dc.rightsThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
dc.rights.accessrightsOpenAccessen_NZ
dc.subjectDisability; Young people; Community participation; Inclusion/exclusion; Wellbeing
dc.titleEnabling Participation for Disabled Young People: Study Protocolen_NZ
dc.typeJournal Article
pubs.elements-id339016
pubs.organisational-data/AUT
pubs.organisational-data/AUT/Health & Environmental Science
pubs.organisational-data/AUT/Health & Environmental Science/Clinical Sciences
pubs.organisational-data/AUT/PBRF
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences/HH Clinical Sciences 2018 PBRF
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