Lived Experience of Dementia in the New Zealand Indian Community: A Qualitative Study With Family Care Givers and People Living With Dementia

Simple item page
aut.relation.issue3en_NZ
aut.relation.journalInternational Journal of Environmental Research and Public Healthen_NZ
aut.relation.volume19en_NZ
aut.researcherKrishnamurthi, Rita
dc.contributor.authorKrishnamurthi, RVen_NZ
dc.contributor.authorDahiya, ESen_NZ
dc.contributor.authorBala, Ren_NZ
dc.contributor.authorCheung, Gen_NZ
dc.contributor.authorYates, Sen_NZ
dc.contributor.authorCullum, Sen_NZ
dc.date.accessioned2022-02-03T02:13:33Z
dc.date.available2022-02-03T02:13:33Z
dc.date.copyright2022en_NZ
dc.date.issued2022en_NZ
dc.description.abstractCurrently, there are estimated to be 70,000 people living with dementia in Aotearoa, New Zealand (NZ). This figure is projected to more than double by 2040, but due to the more rapid growth of older age groups in non-European populations, prevalence will at least triple amongst the NZ Indian population. The impact of dementia in the NZ Indian community is currently un-known. The aim of this study was to explore the lived experiences of NZ Indians living with dementia and their caregivers. Ten caregivers (age range: 41–81) and five people living with mild dementia (age range: 65–77) were recruited from a hospital memory service and two not-for-profit community organisations in Auckland, Aotearoa, NZ. Semi-structured interviews were conducted by bilingual/bicultural researchers and transcribed for thematic analysis in the original languages. Dementia was predominantly thought of as being part of normal ageing. Getting a timely diagnosis was reported as difficult, with long waiting times. Cultural practices and religion played a large part in how both the diagnosis and ongoing care were managed. Caregivers expressed concerns about societal stigma and about managing their own health issues, but the majority also expressed a sense of duty in caring for their loved ones. Services were generally well-received, but gaps were identified in the provision of culturally appropriate services. Future health services should prioritise a timely diagnosis, and dementia care services should consider specific cultural needs to maximise uptake and benefit for Indian families living with dementia.en_NZ
dc.identifier.citationInternational Journal of Environmental Research and Public Health, 19(3), 1432. https://doi.org/10.3390/ijerph19031432
dc.identifier.doi10.3390/ijerph19031432en_NZ
dc.identifier.issn1661-7827en_NZ
dc.identifier.issn1660-4601en_NZ
dc.identifier.urihttps://hdl.handle.net/10292/14869
dc.publisherMDPI
dc.relation.urihttps://www.mdpi.com/1660-4601/19/3/1432
dc.rights© 2022 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https:// creativecommons.org/licenses/by/ 4.0/).
dc.rights.accessrightsOpenAccessen_NZ
dc.subjectCaregivers; Dementia; Indian community; New Zealand; Qualitative
dc.titleLived Experience of Dementia in the New Zealand Indian Community: A Qualitative Study With Family Care Givers and People Living With Dementiaen_NZ
dc.typeJournal Article
pubs.elements-id448238
pubs.organisational-data/AUT
pubs.organisational-data/AUT/Faculty of Design & Creative Technologies
pubs.organisational-data/AUT/Faculty of Health & Environmental Science
pubs.organisational-data/AUT/Faculty of Health & Environmental Science/School of Clinical Sciences
pubs.organisational-data/AUT/Faculty of Health & Environmental Science/School of Clinical Sciences/Psychology & Neuroscience Department
pubs.organisational-data/AUT/PBRF
pubs.organisational-data/AUT/PBRF/PBRF Design and Creative Technologies
pubs.organisational-data/AUT/PBRF/PBRF Design and Creative Technologies/PBRF ECMS
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences/HY Public Health & Psychosocial Studies 2018 PBRF
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
ijerph-19-01432-v2.pdf
Size:
749.91 KB
Format:
Adobe Portable Document Format
Description:
Journal article
Download
License bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
AUT Grant of Licence for Tuwhera Jun 2021.pdf
Size:
360.95 KB
Format:
Adobe Portable Document Format
Description:
Download
Collections
School of Clinical Sciences