Prioritized Strategies to Improve Diagnosis and Early Management of Cerebral Palsy for Both Māori and Non-Māori Families

Williams, Sian A
Nakarada-Kordic, Ivana
Mackey, Anna H
Reay, Stephen
Stott, N Susan
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Journal Article
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AIM: To identify prioritized strategies to support improvements in early health service delivery around the diagnosis and management of cerebral palsy (CP) for both Māori and non-Māori individuals.

METHOD: Using a participatory approach, health care professionals and the parents of children with CP attended co-design workshops on the topic of early diagnosis and management of CP. Health design researchers facilitated two 'discovery' (sharing experiences and ideas) and two 'prototyping' (solution-focused) workshops in Aotearoa, New Zealand. A Māori health service worker co-facilitated workshops for Māori families.

RESULTS: Between 7 and 13 participants (14 health care professionals, 12 parents of children with CP across all functional levels) attended each workshop. The discovery workshops revealed powerful stories about early experiences and needs within clinician-family communication and service provision. The prototyping workshops revealed priorities around communication, and when, what, and how information is provided to families; recommendations were co-created around what should be prioritized within a resource to aid health care navigation.

INTERPRETATION: There is a critical need for improved communication, support, and guidance, as well as education, for families navigating their child with CP through the health care system. Further input from families and health care professionals partnering together will continue to guide strategies to improve health care service delivery using experiences as a mechanism for change.

4203 Health Services and Systems , 42 Health Sciences , Clinical Research , Brain Disorders , Health Services , Cerebral Palsy , Pediatric , Perinatal Period - Conditions Originating in Perinatal Period , Rehabilitation , 7.1 Individual care needs , 8.1 Organisation and delivery of services , 8 Health and social care services research , 7 Management of diseases and conditions , 3 Good Health and Well Being , 11 Medical and Health Sciences , Pediatrics , 32 Biomedical and clinical sciences , 42 Health sciences , 52 Psychology
Developmental Medicine and Child Neurology, ISSN: 0012-1622 (Print); 1469-8749 (Online), Wiley. doi: 10.1111/dmcn.15847
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© 2024 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.