Using Photovoice To Explore the Lived Environment and Experience of Older Adults With Frailty on Their Kidney Transplant Journey

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aut.relation.journalKidney360
dc.contributor.authorHladek, Melissa deCardi
dc.contributor.authorWilson, Deborah
dc.contributor.authorKrasnansky, Katie
dc.contributor.authorMcDaniel, Kennedy
dc.contributor.authorShanbhag, Meera
dc.contributor.authorMcAdams-DeMarco, Mara
dc.contributor.authorCrews, Deidra C
dc.contributor.authorBrennan, Daniel C
dc.contributor.authorTaylor, Janiece
dc.contributor.authorSegev, Dorry
dc.contributor.authorWalston, Jeremy
dc.contributor.authorXue, Qian-Li
dc.contributor.authorSzanton, Sarah L
dc.date.accessioned2024-03-27T00:09:13Z
dc.date.available2024-03-27T00:09:13Z
dc.date.issued2024-02-21
dc.description.abstractBACKGROUND: Older adults with frailty and kidney failure face higher waitlist mortality and are more likely to be listed as inactive on the kidney transplant (KT) wait list. Photovoice is a qualitative participatory research method where participants use photographs to represent their environment, needs and experiences. It offers unique insight into the lived environment and experience of patients and may offer direction in how to improve functional independence, symptom burden, and kidney transplant outcomes in adults with frailty. METHODS: This photovoice study was embedded within a larger intervention adaptation project. Participants with pre-frailty or frailty awaiting a KT or recently post-transplant took photos with Polaroid cameras and wrote short descriptions for 11 prompts. Each participant completed a semi-structured interview wherein their photos were discussed. The team coded and discussed photos and interviews to determine overarching themes and implications. Focus groups were used to triangulate visual data findings. RESULTS: Sixteen participants completed both the photovoice and interview. Participants were a mean age of 60.5 years, 31.2% female, 43.4% self-identifying as Black, and 69% were frail. Outcomes were categorized into seven themes: functional space, home safety, medication management, adaptive coping, life changing nature of dialysis, support and communication. Visual data clarified and sometimes changed the interpretations of the text alone. Especially within the themes of home safety and functional space, safety hazards not previously recognized in the literature, like dialysis fluid storage, were identified. CONCLUSIONS: Photovoice contextualizes the living conditions and experiences of adults with frailty on the kidney transplant journey and could be a useful tool in geriatric nephrology and transplant. Addressing issues of home storage, organization, and accessibility should be explored as potential intervention targets. Incorporating participant values and goals into care decisions and interventional design should be further explored.
dc.identifier.citationKidney360, ISSN: 2641-7650 (Print); 2641-7650 (Online), Ovid Technologies (Wolters Kluwer Health). doi: 10.34067/kid.0000000000000380
dc.identifier.doi10.34067/kid.0000000000000380
dc.identifier.issn2641-7650
dc.identifier.issn2641-7650
dc.identifier.urihttp://hdl.handle.net/10292/17387
dc.languageen
dc.publisherOvid Technologies (Wolters Kluwer Health)
dc.relation.urihttps://journals.lww.com/kidney360/abstract/9900/using_photovoice_to_explore_the_lived_environment.335.aspx
dc.rightsThis is an open access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.
dc.rights.accessrightsOpenAccess
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subject4203 Health Services and Systems
dc.subject42 Health Sciences
dc.subjectTransplantation
dc.subjectClinical Research
dc.subjectKidney Disease
dc.subjectAging
dc.subjectOrgan Transplantation
dc.subject7 Management of diseases and conditions
dc.subject7.1 Individual care needs
dc.subjectGeneric health relevance
dc.subjectRenal and urogenital
dc.subject3202 Clinical sciences
dc.subject4202 Epidemiology
dc.titleUsing Photovoice To Explore the Lived Environment and Experience of Older Adults With Frailty on Their Kidney Transplant Journey
dc.typeJournal Article
pubs.elements-id539336
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