A Personalised Activity Programme Helps Reduce Fatigue in People After Guillain-Barré Syndrome in a Replicated Single System Design
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Taylor and Francis Group
Abstract
PURPOSE: We evaluated the effectiveness of an online activity-focussed programme to decrease fatigue in people with prior Guillain-Barré Syndrome and explored the perspectives of participants regarding the acceptability and feasibility of the programme. MATERIALS AND METHODS: We recruited eight people diagnosed with Guillain-Barré Syndrome more than two years previously who still had fatigue limiting daily activity. We used mixed methods with a replicated single system design using repeated outcome measures across the three phases (baseline, intervention, follow-up) to evaluate the impact of the intervention on fatigue, activity, wellbeing and confidence to exercise. We used qualitative interviews to explore participants' perspectives of the programme. RESULTS: All participants developed a personalized plan to manage fatigue using goals and feedback, which was effective in reducing fatigue for most participants. Participants were positive about what they had learnt about fatigue, themselves and strategies to manage fatigue. Some participants also experienced improvements in activity, exercise confidence and health and wellbeing. Not all changes were sustained past the follow-up period, which reflects participants' differing levels of confidence to continue with their plan. CONCLUSION: Graduated physical activity in association with developing a personalised plan were key features effective in managing fatigue after Guillain-Barré Syndrome.Description
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behaviour change, fatigue, Guillain-Barré Syndrome, self-management, telehealth, Activity, 4203 Health Services and Systems, 4206 Public Health, 42 Health Sciences, Clinical Research, Clinical Trials and Supportive Activities, Physical Activity, 7.1 Individual care needs, Stroke, 3 Good Health and Well Being, 11 Medical and Health Sciences, Rehabilitation, 32 Biomedical and clinical sciences, 44 Human society
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Disability and Rehabilitation, ISSN: 0963-8288 (Print); 1464-5165 (Online), Taylor and Francis Group, 47(6), 1442-1454. doi: 10.1080/09638288.2024.2374486
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© 2024 the author(s). This is an open access article distributed under the terms of the Creative Commons attribution-nonCommercial-noDerivatives license (http://creativecommons.org/licenses/by-nc-nd/4.0/),which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in anyway. the terms on which this article has been published allow the posting of the accepted Manuscript in a repository by the author(s) or with their consent