Living with Dementia in Aotearoa (LiDiA): A Cross-sectional Feasibility Study Protocol for a Multiethnic Dementia Prevalence Study in Aotearoa/New Zealand

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aut.relation.endpagee046143
aut.relation.issue5en_NZ
aut.relation.journalBMJ Openen_NZ
aut.relation.startpagee046143
aut.relation.volume11en_NZ
aut.researcherKrishnamurthi, Rita
dc.contributor.authorMartinez-Ruiz, Aen_NZ
dc.contributor.authorYates, Sen_NZ
dc.contributor.authorCheung, Gen_NZ
dc.contributor.authorDudley, Men_NZ
dc.contributor.authorKrishnamurthi, Ren_NZ
dc.contributor.authorFa'alau, Fen_NZ
dc.contributor.authorRoberts, Men_NZ
dc.contributor.authorTaufa, Sen_NZ
dc.contributor.authorFa'alili-Fidow, Jen_NZ
dc.contributor.authorRivera-Rodriguez, Cen_NZ
dc.contributor.authorKautoke, Sen_NZ
dc.contributor.authorMa'u, Een_NZ
dc.contributor.authorKerse, Nen_NZ
dc.contributor.authorCullum, Sen_NZ
dc.date.accessioned2021-05-18T00:58:51Z
dc.date.available2021-05-18T00:58:51Z
dc.date.copyright2021en_NZ
dc.date.issued2021en_NZ
dc.description.abstractINTRODUCTION: Aotearoa/New Zealand (NZ) is officially recognised as a bicultural country composed of Māori and non-Māori. Recent estimations have projected a threefold increase in dementia prevalence in NZ by 2050, with the greatest increase in non-NZ-Europeans. The NZ government will need to develop policies and plan services to meet the demands of the rapid rise in dementia cases. However, to date, there are no national data on dementia prevalence and overseas data are used to estimate the NZ dementia statistics. The overall aim of the Living with Dementia in Aotearoa study was to prepare the groundwork for a large full-scale NZ dementia prevalence study. METHODS AND ANALYSIS: The study has two phases. In phase I, we will adapt and translate the 10/66 dementia assessment protocol to be administered in Māori, Samoan, Tongan and Fijian-Indian elders. The diagnostic accuracy of the adapted 10/66 protocol will be tested in older people from these ethnic backgrounds who were assessed for dementia at a local memory service. In phase II, we will address the feasibility issues of conducting a population-based prevalence study by applying the adapted 10/66 protocol in South Auckland and will include NZ-European, Māori, Samoan, Tongan, Chinese and Fijian-Indian participants. The feasibility issues to be explored are as follows: (1) how do we sample to ensure we get accurate community representation? (2) how do we prepare a workforce to conduct the fieldwork and develop quality control? (3) how do we raise awareness of the study in the community to maximise recruitment? (4) how do we conduct door knocking to maximise recruitment? (5) how do we retain those we have recruited to remain in the study? (6) what is the acceptability of study recruitment and the 10/66 assessment process in different ethnic groups? ETHICS AND DISSEMINATION: The validity and feasibility studies were approved by the New Zealand Northern A Health and Disability Ethics Committee (numbers 17NTA234 and 18NTA176, respectively). The findings will be disseminated through peer-reviewed academic journals, national and international conferences, and public events. Data will be available on reasonable request from the corresponding author.en_NZ
dc.identifier.citationBMJ Open 2021;11:e046143. doi: 10.1136/bmjopen-2020-046143
dc.identifier.doi10.1136/bmjopen-2020-046143en_NZ
dc.identifier.issn2044-6055en_NZ
dc.identifier.issn2044-6055en_NZ
dc.identifier.urihttps://hdl.handle.net/10292/14193
dc.languageengen_NZ
dc.relation.urihttps://bmjopen.bmj.com/content/11/5/e046143
dc.rights© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
dc.rights.accessrightsOpenAccessen_NZ
dc.subjectDementiaen_NZ
dc.subjectGeriatric medicineen_NZ
dc.subjectOld age psychiatryen_NZ
dc.subjectPublic healthen_NZ
dc.titleLiving with Dementia in Aotearoa (LiDiA): A Cross-sectional Feasibility Study Protocol for a Multiethnic Dementia Prevalence Study in Aotearoa/New Zealanden_NZ
dc.typeJournal Article
pubs.elements-id430411
pubs.organisational-data/AUT
pubs.organisational-data/AUT/Faculty of Health & Environmental Science
pubs.organisational-data/AUT/Faculty of Health & Environmental Science/School of Clinical Sciences
pubs.organisational-data/AUT/Faculty of Health & Environmental Science/School of Clinical Sciences/Psychology & Neuroscience Department
pubs.organisational-data/AUT/PBRF
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences/HY Public Health & Psychosocial Studies 2018 PBRF
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