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dc.contributor.authorLevack, WM
dc.contributor.authorBoland, P
dc.contributor.authorTaylor, WJ
dc.contributor.authorSiegert, RJ
dc.contributor.authorKayes, NM
dc.contributor.authorFadyl, JK
dc.contributor.authorMcPherson, KM
dc.date.accessioned2015-04-10T04:49:45Z
dc.date.available2015-04-10T04:49:45Z
dc.date.copyright2014
dc.identifier.citationBMJ Open 2014;4:e004630. doi:10.1136/bmjopen-2013-004630
dc.identifier.issn2044-6055
dc.identifier.urihttp://hdl.handle.net/10292/8552
dc.description.abstractObjective To develop a theoretically sound, client-derived framework to underpin development of a measure reflecting the impact of traumatic brain injury (TBI) on a person's self-identity. Design Grounded theory, based on transcription of audio recordings from focus group meetings with people who have experienced TBI, analysed with constant comparative methods. Setting 8 different urban and rural communities in New Zealand. Participants 49 people (34 men, 15 women), 6 months to 36 years after mild-to-severe TBI. Results The central concept emerging from the data was that of desiring to be or having lost a sense of being an integrated and valued person. The three main subthemes were: (1) having a coherent, satisfying and complete sense of oneself, (2) respect, validation and acceptance by others and (3) having a valued place in the world. Conclusions This study reinforces the notion that change in self-identity is an important aspect of life after TBI, and provides information on what this concept means to people with TBI. In order to scientifically evaluate relationships between self-identity and other aspects of health (eg, depression, quality of life), and to test the effect of interventions to address problems with self-identity after TBI, a quantitative tool for evaluation of this construct is required. Themes from this research provide a foundation for the development of a measure of self-identity grounded in the language and experience of people with TBI.
dc.languageeng
dc.publisherBMJ Publishing Group Ltd.
dc.relation.urihttp://dx.doi.org/10.1136/bmjopen-2013-004630
dc.rightsThis is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/
dc.subjectLived experience
dc.subjectOutcome
dc.subjectQualitative research
dc.subjectSelf-concept
dc.subjectSelf-identity
dc.subjectTraumatic brain injury
dc.titleEstablishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development
dc.typeJournal Article
dc.rights.accessrightsOpenAccess
dc.identifier.doi10.1136/bmjopen-2013-004630
aut.relation.issue5
aut.relation.startpagee004630
aut.relation.volume4
pubs.elements-id166978


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