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Albinism is an inherited genetic condition that reduces the amount of melanin pigment formed in the skin, hair, and/or eyes. As a result of this condition, people with albinism have vulnerability to the sun and bright light, and all of them are visually impaired and more likely to develop skin cancer. This is a multi-strategy research (research that combines quantitative and qualitative research) aims to determine the needs of people with albinism and assess how well these are being met against the objectives of the New Zealand Disability Strategy of 2001 and the requirements of the United Nations Convention on the Rights of Persons with Disabilities of 2006. It was found that New Zealanders with albinism face socio-economic challenges because their condition is often misunderstood.
Human albinism; Disability; New Zealand; Social sciences; Public policy