Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development
aut.relation.issue | 5 | |
aut.relation.startpage | e004630 | |
aut.relation.volume | 4 | |
aut.researcher | McPherson, Kathryn | |
dc.contributor.author | Levack, WM | |
dc.contributor.author | Boland, P | |
dc.contributor.author | Taylor, WJ | |
dc.contributor.author | Siegert, RJ | |
dc.contributor.author | Kayes, NM | |
dc.contributor.author | Fadyl, JK | |
dc.contributor.author | McPherson, KM | |
dc.date.accessioned | 2015-04-10T04:49:45Z | |
dc.date.available | 2015-04-10T04:49:45Z | |
dc.date.copyright | 2014 | |
dc.date.issued | 2014 | |
dc.description.abstract | Objective To develop a theoretically sound, client-derived framework to underpin development of a measure reflecting the impact of traumatic brain injury (TBI) on a person's self-identity. Design Grounded theory, based on transcription of audio recordings from focus group meetings with people who have experienced TBI, analysed with constant comparative methods. Setting 8 different urban and rural communities in New Zealand. Participants 49 people (34 men, 15 women), 6 months to 36 years after mild-to-severe TBI. Results The central concept emerging from the data was that of desiring to be or having lost a sense of being an integrated and valued person. The three main subthemes were: (1) having a coherent, satisfying and complete sense of oneself, (2) respect, validation and acceptance by others and (3) having a valued place in the world. Conclusions This study reinforces the notion that change in self-identity is an important aspect of life after TBI, and provides information on what this concept means to people with TBI. In order to scientifically evaluate relationships between self-identity and other aspects of health (eg, depression, quality of life), and to test the effect of interventions to address problems with self-identity after TBI, a quantitative tool for evaluation of this construct is required. Themes from this research provide a foundation for the development of a measure of self-identity grounded in the language and experience of people with TBI. | |
dc.identifier.citation | BMJ Open 2014;4:e004630. doi:10.1136/bmjopen-2013-004630 | |
dc.identifier.doi | 10.1136/bmjopen-2013-004630 | |
dc.identifier.issn | 2044-6055 | |
dc.identifier.uri | https://hdl.handle.net/10292/8552 | |
dc.language | eng | |
dc.publisher | BMJ Publishing Group Ltd. | |
dc.relation.uri | http://dx.doi.org/10.1136/bmjopen-2013-004630 | |
dc.rights | This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/ | |
dc.rights.accessrights | OpenAccess | |
dc.subject | Lived experience | |
dc.subject | Outcome | |
dc.subject | Qualitative research | |
dc.subject | Self-concept | |
dc.subject | Self-identity | |
dc.subject | Traumatic brain injury | |
dc.title | Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development | |
dc.type | Journal Article | |
pubs.elements-id | 166978 | |
pubs.organisational-data | /AUT | |
pubs.organisational-data | /AUT/Health & Environmental Science |