The Experiences and Perceptions of Healthy Siblings of Children with a Long-Term Condition: Umbrella Review

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aut.relation.endpage203
aut.relation.journalJournal of Pediatric Nursing
aut.relation.startpage191
aut.relation.volume77
dc.contributor.authorBlamires, Julie
dc.contributor.authorFoster, Mandie
dc.contributor.authorRasmussen, Shayne
dc.contributor.authorZgambo, Maggie
dc.contributor.authorMorelius, Evalotte
dc.date.accessioned2024-04-23T04:37:00Z
dc.date.available2024-04-23T04:37:00Z
dc.date.issued2024-04-04
dc.description.abstractProblem The lives of healthy siblings living with a sibling with a long- term condition are often shaped by the family, type of illness, length of illness, age of the child, caregiver demands, and support provided to the family, ill sibling, and healthy sibling. While the experiences of healthy siblings are documented in the literature by parent proxy, literature on healthy siblings self-reported experiences of living with a sibling who has a long-term condition remains scarce. Purpose This umbrella review aims to synthesize reviews on the self-reported experiences of healthy siblings of children living with a sibling who has a long-term condition. Eligibility criteria Published peer-reviewed reviews in English language exploring the self-reported experiences of healthy siblings under 24 years old, whose siblings are diagnosed with a long-term condition. Sample Using a developed search strategy, seven electronic databases (CINAHLPlus, Scopus, PubMed, PsycINFO, Cochrane Database of Systematic Reviews, Clinical Key, and Google Scholar) were searched from 2018 till December 2023. Eleven reviews met the inclusion criteria and were subjected to narrative synthesis. Results Four themes (adjusting to changes, wanting to help, living the ups and downs, living the changes), and eight subthemes were generated from the syntheses. Conclusion This is the first umbrella review undertaken on healthy siblings self-reported experiences of living with a sibling who has a long-term condition. The impact of a long-term condition on healthy siblings of children with a long-term condition suggests a need for healthcare providers and organisations to provide better emotional, psychological, and informational support to healthy siblings and their families. Implications Findings from this review will inform healthcare providers, organisations, researchers, and policymakers on the development of future clinical practices and research for healthy siblings.
dc.identifier.citationJournal of Pediatric Nursing, ISSN: 0882-5963 (Print); 1532-8449 (Online), Elsevier, 77, 191-203. doi: 10.1016/j.pedn.2024.03.022
dc.identifier.doi10.1016/j.pedn.2024.03.022
dc.identifier.issn0882-5963
dc.identifier.issn1532-8449
dc.identifier.urihttp://hdl.handle.net/10292/17463
dc.languageen
dc.publisherElsevier
dc.relation.urihttps://www.sciencedirect.com/science/article/pii/S088259632400099X
dc.rights© 2024 The Authors. Published by Elsevier Inc. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).
dc.rights.accessrightsOpenAccess
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subject1110 Nursing
dc.subject1114 Paediatrics and Reproductive Medicine
dc.subjectNursing
dc.subject3213 Paediatrics
dc.subject4205 Nursing
dc.titleThe Experiences and Perceptions of Healthy Siblings of Children with a Long-Term Condition: Umbrella Review
dc.typeJournal Article
pubs.elements-id543649
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