Recalibrating Hope: A Longitudinal Study of the Experiences of People With Aphasia After Stroke

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aut.relation.endpage435
aut.relation.issue2en_NZ
aut.relation.journalScandinavian Journal of Caring Sciencesen_NZ
aut.relation.startpage428
aut.relation.volume34en_NZ
aut.researcherDrabsch, Julie
dc.contributor.authorBright, FASen_NZ
dc.contributor.authorMcCann, CMen_NZ
dc.contributor.authorKayes, NMen_NZ
dc.date.accessioned2020-11-27T02:43:26Z
dc.date.available2020-11-27T02:43:26Z
dc.date.copyright2020en_NZ
dc.date.issued2020en_NZ
dc.description.abstractBACKGROUND: Hope is a critical resource for people with aphasia after stroke, sustaining people though times of distress and uncertainty and providing motivation. In the first months after stroke, hope is vulnerable to different influences, and people can struggle to identify and work towards hopes for the future. We have little knowledge about how people with aphasia experience hope in the longer term after stroke. OBJECTIVES: To identify how people with aphasia experience hope 1 year after stroke and how hope may change in the year after stroke. METHODS: The study used an Interpretive Description methodology. Interviews were conducted with four people with aphasia who had been interviewed 1 year previously. These were analysed using content analysis. RESULTS: All people reported a broad sense of hope for the future. They described an active process of recalibrating their early poststroke hopes through a process of reflecting on past progress, current function and what they considered might be possible and desirable in the future. People were able to develop 'new' hopes that were meaningful and seemingly achievable when they had a sense of a possible, desirable future. Those who struggled to see a possible future maintained a hope that things will be good. Social supports, a sense of progress, engagement in meaningful activities and interactions appeared crucial in helping people (re)develop hopes for their future. CONCLUSIONS: Hope and hopes for the future gradually changed after stroke. Hope, identity and social connectedness were closely entwined and could enable people to both dwell in the present and move towards desired futures. This research suggests clinicians should prioritise creating hope-fostering environments which support people to develop hope for their future.en_NZ
dc.identifier.citationScandinavian Journal of Caring Sciences, 34(2), 428-435.
dc.identifier.doi10.1111/scs.12745en_NZ
dc.identifier.issn0283-9318en_NZ
dc.identifier.issn1471-6712en_NZ
dc.identifier.urihttps://hdl.handle.net/10292/13831
dc.languageengen_NZ
dc.publisherWileyen_NZ
dc.relation.urihttps://onlinelibrary.wiley.com/doi/full/10.1111/scs.12745
dc.rights© 2019 The Authors. Scandinavian Journal of Caring Sciences published by John Wiley & Sons Ltd on behalf of Nordic College of Caring Science This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
dc.rights.accessrightsOpenAccessen_NZ
dc.subjectAdjustmenten_NZ
dc.subjectAphasiaen_NZ
dc.subjectHopeen_NZ
dc.subjectStrokeen_NZ
dc.titleRecalibrating Hope: A Longitudinal Study of the Experiences of People With Aphasia After Strokeen_NZ
dc.typeJournal Article
pubs.elements-id363757
pubs.organisational-data/AUT
pubs.organisational-data/AUT/Health & Environmental Science
pubs.organisational-data/AUT/Health & Environmental Science/Clinical Sciences
pubs.organisational-data/AUT/PBRF
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences
pubs.organisational-data/AUT/PBRF/PBRF Health and Environmental Sciences/HH Clinical Sciences 2018 PBRF
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