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Health Care Experiences of Mothers of Children With Bronchiectasis in Counties Manukau, Auckland, New Zealand

Jepsen, N; Charania, NA; Mooney, S
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http://hdl.handle.net/10292/13499
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Abstract
Background: Bronchiectasis is a worsening public health problem in New Zealand. This study aimed to explore the health care experiences of mothers of children with bronchiectasis in the Counties Manukau District Health Board area of Auckland, New Zealand. Methods: Semi-structured interviews were undertaken with ten mothers of children with bronchiectasis. Data were analysed using thematic analysis. Results: Five themes emerged: 1) Searching for answers, describing mothers' search for a diagnosis; 2) (Dis)empowerment, describing mothers' acquisition of knowledge, leading to empowerment; 3) Health care and relationships, describing the impact of relationships on the mother's health care experiences; 4) A juggling act, describing the challenges of juggling health care with school, work and family; 5) Making it work, describing how mothers overcome barriers to access health care for their child. Conclusions: The health provider-parent relationship was crucial for fostering positive health care experiences. Mothers' acquisition of knowledge facilitated empowerment within those relationships. Additionally, mothers' perceptions of the quality and benefit of health services motivated them to overcome barriers to accessing care. Study findings may help to improve health care experiences for parents of children with bronchiectasis if identified issues are addressed.
Keywords
Barriers; Health care access; Bronchiectasis; New Zealand; Child health; Qualitative
Date
2018
Source
BMC Health Services Research, 18, 722 (2018). https://doi.org/10.1186/s12913-018-3532-9
Item Type
Journal Article
Publisher
BioMed Central
DOI
10.1186/s12913-018-3532-9
Publisher's Version
https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-018-3532-9
Rights Statement
This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

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